It’s been a crazy few weeks and honestly my head and heart have been all over the place. I’m currently in a car en-route to UCLH where I will be checking in for 6 nights and I know they don’t have a mini bar! It will be the first of 2 treatment sessions over the next few months. All I could think about yesterday was that it was last day of normal life for some time. My emotions were all over the place. The more time you have to think about things the worse it gets. Wish me luck!

For this type of treatment (ESHAP) I need to have a PICC line inserted. I don’t know why, but this was the one the worried me most and I was dreading it. The procedure consists of threading a catheter tube into a vein in your arm which gets as close as possible to the heart. Delightful ! It consists of 3 tubes of different lengths so they can administer 3 drugs simultaneously without any issues etc. They can also use it to take blood samples and for hydration. Now if they could only figure out how to get vodka in that drip! On the positive side you don’t need to have to be pricked every time they need to take blood or administer treatment. I have decided to call it my USB and it will be with me for the next few months. To be honest it was almost a painless procedure. I had the A team on the case. Once they have read you all the risks you just need to sign your consent and pray it all goes to plan!

My USB

Everything treatment was delayed since the 10th of January due to my run in with Covid! Not sure if you realise that Covid can stick around for some time and get picked up on PCR tests for months sometimes. Last week after getting a negative result I had my USB inserted and then straight to hospital. I was as ready as can be. Blood tests, meet the nurses and doctor. Everyone amazing as always. I also realised I had never had to stay in hospital overnight in my life so this was definitely going to be a new experience! Apart from the crap internet and mediocre food everything was on track…. Until the result of my on the day PCR test came back in early evening. I was still testing positive! FFS! Being a Covid guru myself I ask what the viral load is and the answer is we don’t get this type of information! Really!?

So the nurse opens the door to announce this and says he has to go and change his mask now. Just say someone has Covid and see the change in behaviour lol. He then tells me they are waiting to see if I need to be transferred to the infectious ward or be discharged. No thanks honey I won’t be going to the infectious ward to get a new dose of Covid! I text my Dr to see if we can talk about this. Dr Kyriakou is awesome and called me straight away. I was certainly not infectious at this stage but no one had access to the viral load! So it was decided that I should go home and we try again the following week once I have a few more negative PCR results.

Rocking the PICC line as you do!

I just wanted to thank all of you for the lovely comments and messages. I had forgotten how many people were following my posts and apologies for the bluntness at times! For me it’s all about getting it out of my head and on here. It’s my own therapy. You are welcome to join me on the journey and I won’t be offended if you don’t either. We all have our own battles in life.

To my hubby Nathan I would not be able to do this without your love and support. To my boss and friend Kirsty this would not be possible without you. To my work family you all rock! Sorry you will be living this with me on TEAMS 😂

Much love ❤️ Mark xx

6 Comments

  1. I just left a comment without logging in so I don’t know if it sent?! I just said… when I saw the notification on my email that you had written another blog, I knew what had happened. I am sorry to read that you are going things this journey all over again, but I also said you’re well entitled to an f’ing Belvedere vodka drip too!! I mean🤷‍♀️ sending my love and support to one of the two best bosses/mentors I ever had (the other being Denis P of course!) ❤❤❤ I will be reading and following your journey xxx

    Liked by 2 people

  2. Oh Mark, so sorry you are going through this again, both Norm and I are thinking about you and sending love. Your blog is an inspiration to us, you are so positive and write it as it is, which is great. You take care my lovely ex gym buddy, we are all routing for you and keep writing that blog. Sending you and that lovely husband of yours Nathan much love. xx the Norms xx

    Liked by 1 person

  3. My dearest Mark,

    You are such an amazing soul! I am constantly thinking about you and wished so very much that I was closer to give you the BIGGEST HUG ever!!!

    I have to say, loving the USB 🙂 …. It will make a big difference to you to have that in … as you say, saves you from getting jabbed every time with blood tests etc., etc and so the list goes on! And yes I agree, there should be a Vodka line in there too!

    Keep well, keep strong and just know that you are in my thoughts constantly!

    Loads of love to you xxoooxxooo
    KJ

    Liked by 1 person

  4. Darling Heart ♥️ Mark,

    Thank you for your amazing and honest Blogging.
    It’s a bittersweet reading as it makes me cry and laugh at the same time.
    I miss your wonderful sense of humour ♥️Nearly As much As I miss you ♥️
    Vodka line would be paramount for this USB.
    (In Australia 🇦🇺 we use Esky as minibar…)

    Sending you and fam so much love ♥️From down under- Leena ♥️

    Liked by 1 person

  5. My very dear friend I do wish you all the luck in the world! You will end up stronger than ever but till then it will be a struggle so be ready with all your battle gear and start fighting❤️ Lots of love and luck😘 Look forwards to hearing from you as soon as you can. Hugs and kisses Una

    Liked by 1 person

  6. Dearest Sunshine, I’m soOoooo sorry to hear you’re going through this all again. You’re such a strong amazing soul even though you’ve been through so much already, but with your positivity, & all the love & support around you’ll fight this again 💪🏼🤜🏼 I know it 😉 I’m sending all the love & light in the world to help you through this ✨✨✨✨ I have a little woofer of my own now, he is also sending lots of licks leaps & an abundance of love your way 🐾 keep glowing & remember everyone loves you ❤️ The biggest of big squishy hugs 🤗 D xx

    Liked by 1 person

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